Dados do Trabalho

Título

RELEVANCE OF THE TRANSITION AMBULATORY OF EPILEPSY

Introdução

Epilepsy is a chronic condition that affects a considerable portion of the population, being one of the most frequent neurological diseases. The high incidence and the losses procedeed from low seizure control, lead to the need to know the peculiarities of epilepsy in order to promote adequate intervention to the patient in transition. Epileptic patients end their childhood and become adolescents and adults with the disease. Therefore, the purpose of the Transition Ambulatory of Epilepsy is to help the patient to gradually assume responsibility for their treatment, assist in the autonomy process and ensure adherence to medical follow-up. Approaches to professions, relationships, habits and addictions are present in the routine of this clinic. These patients need a structured transition plan so that, when responsible for their self-care, they can succeed in the continuity of crisis control.

Objetivo

The objective of this work is to present the relevance of the Transition Ambulatory of Epilepsy. Through knowledge of this, it can be implemented in other services, expanding the specific care for adolescents who need a differentiated approach to their disease.

Métodos

This work is an cross-sectional study in progress, in which an analysis of medical records is performed based on consultations and a specific questionnaire, which assesses independence from self-medication, knowledge of the disease and the impact on their activities, daily routines and life planning. This questionnaire is applied to the patient and his/her responsible, focusing on their chronic disease, during the first medical consultation and reapplied after 12 months of follow-up. During follow-up, adolescents between 12 and 18 years of age are seen separately from their parents, and then together.

Resultados

Although still in progress, it is already possible to observe that the analyzed patients, when starting specific follow-up, presented better conditions to grow and evolve in all the proposed aspects. Autonomy in care, mastery over the disease, as well as adherence to treatment, became a shared responsibility with patient participation in decision-making.

Conclusões

Transition Ambulatory of Epilepsy has impacted, directly and indirectly, on the quality life of the patient and his family, contributing to a functional and productive life, becoming crucial for the introduction of the patient to independence.

Palavras chave

adolescents, autonomy, Transition Ambulatory of Epilepsy.

Referências (se houver)

1- Jurasek L, Ray L, Quigley D. Development and implementation of an adolescent epilepsy transition clinic. J Neurosci Nurs. 2010 Aug;42(4):181-9. doi: 10.1097/jnn.0b013e3181e26be6. PMID: 20804112.
2- Smith PE, Myson V, Gibbon F. A teenager epilepsy clinic: observational study. Eur J Neurol. 2002 Jul;9(4):373-6. doi: 10.1046/j.1468-1331.2002.00418.x. PMID: 12099921.
3- Laue-Gizzi H. Discontinuation of antiepileptic drugs in adults with epilepsy. Aust Prescr. 2021 Apr;44(2):53-56. doi: 10.18773/austprescr.2021.005. Epub 2021 Apr 1. PMID: 33911333; PMCID: PMC8075746.
4- Kirkpatrick L, Collins A, Sogawa Y, Birru Talabi M, Harrison E, Kazmerski TM. Sexual and reproductive healthcare for adolescent and young adult women with epilepsy: A qualitative study of pediatric neurologists and epileptologists. Epilepsy Behav. 2020 Mar;104(Pt A):106911. doi: 10.1016/j.yebeh.2020.106911. Epub 2020 Jan 24. PMID: 31986439.

Fonte de Fomento (se houver)

Declaração de conflito de interesses de TODOS os autores

Declaramos não estarmos submetidos a qualquer tipo de conflito de interesse, direto ou indireto, para o desenvolvimento do projeto de pesquisa intitulado " RELEVANCE OF THE TRANSITION AMBULATORY OF EPILEPSY ", cujos pesquisadores envolvidos são os autores previamente inscritos neste trabalho.

Área

Epilepsias